This was my first public post through my Instagram (www.instagram.com/seebexknit) about our precious baby number four, Lysander Immanuel.
I’ve been trying to share about Baby No. 4 for over a month since we learned during a routine ultrasound at 22 weeks gestation that he has many congenital birth defects including a missing limb, conjoined kidneys, ambiguous genitalia, edema, and a congenital diaphragmatic hernia. Another ultrasound with a Maternal Fetal Specialist further confirmed these findings, and at that time the prognosis was Lysander would mostly likely not survive a full pregnancy or long after an early birth. 💔
How do I carry a supposedly dying baby? How we tell our three older kids their little brother is possibly going to die? For a month we grieved and hurt and of course life went on. We also found there is still joy in life, in being with one another, through the kindness of others, in the nearness of God that seems to deepen when one’s heart feels utterly smashed.
This past Monday, the latest ultrasound showed... boy parts!! And two separate kidneys!! 🙌🏼 And an active, one pound baby boy who likes to touch his toes to his forehead, be uncooperative with the ultrasound tech, and yet stood still long enough for us to see his heart is structurally sound for now, beating strong. Lysander’s diaphragmatic hernia is still of grave concern, but it seems that while before we thought we could only wait for an impending death, it is not over just yet. As long as his heart stays strong, his lungs develop, and I stay pregnant, Lysander seems to have a fighting chance. We will probably face surgeries and an intense and extensive medical journey, but... It’s not over yet.
So now we continue to wait and see, how Lysander’s heart and lungs grow, how this pregnancy progresses, and as always, the goodness and faithfulness of our God that prevails no matter our circumstances.
Blessed be the name of the Lord.
To be continued... 🙏🏼
I’ve been trying to share about Baby No. 4 for over a month since we learned during a routine ultrasound at 22 weeks gestation that he has many congenital birth defects including a missing limb, conjoined kidneys, ambiguous genitalia, edema, and a congenital diaphragmatic hernia. Another ultrasound with a Maternal Fetal Specialist further confirmed these findings, and at that time the prognosis was Lysander would mostly likely not survive a full pregnancy or long after an early birth. 💔
How do I carry a supposedly dying baby? How we tell our three older kids their little brother is possibly going to die? For a month we grieved and hurt and of course life went on. We also found there is still joy in life, in being with one another, through the kindness of others, in the nearness of God that seems to deepen when one’s heart feels utterly smashed.
This past Monday, the latest ultrasound showed... boy parts!! And two separate kidneys!! 🙌🏼 And an active, one pound baby boy who likes to touch his toes to his forehead, be uncooperative with the ultrasound tech, and yet stood still long enough for us to see his heart is structurally sound for now, beating strong. Lysander’s diaphragmatic hernia is still of grave concern, but it seems that while before we thought we could only wait for an impending death, it is not over just yet. As long as his heart stays strong, his lungs develop, and I stay pregnant, Lysander seems to have a fighting chance. We will probably face surgeries and an intense and extensive medical journey, but... It’s not over yet.
So now we continue to wait and see, how Lysander’s heart and lungs grow, how this pregnancy progresses, and as always, the goodness and faithfulness of our God that prevails no matter our circumstances.
Blessed be the name of the Lord.
To be continued... 🙏🏼
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